The American Sleep Apnea Association was founded in 1990 with a goal to administer and nurture a new model of sleep apnea peer support groups. Adam Amdur has been the Chief Patient Officer since 2014 and in a wide ranging conversation we talk about the work of the ASAA, dispel some of the myths and misperceptions about sleep apnea, and discover how patients can find help and support from the ASAA.
This episode’s guest:
Adam Amdur is the Chief Patient Officer of the American Sleep Apnea Association. He was diagnosed with severe obstructive sleep apnea in 2008, more than thirty years after he first showed symptoms. As the first patient principal investigator and co-founder of the Sleep Apnea Patient-Centered Outcomes Network, a part of the National Patient-Centered Clinical Research Network, Adam worked to bring together patient leaders from other networks in order to discover a common patient voice as it relates to research best practices and collaboration with diverse stakeholders. He has increased awareness through multiple media interviews and has been a lead presenter at the National Institutes of Health’s Precision Medicine Initiative.